My heart story

· Why share my story with others? ·

February 1, 2018 0 Comments

With a medical community that does so much to preserve a patient's privacy; in a world that judges and values people on a strict scale of perfection, why share my story? Simple.

I wanted to share my story with the world because I know I am not alone.  Ebstein’s Anomaly cases are 1 in 200,000 which is quite rare, but congenital heart defects are 1 in 100, and even when you are one of many with such an ailment when you are battling a life-threatening condition, you can feel pretty isolated, and alone.  You are not.  And your story doesn’t have to be one of defeat.  

When sharing my story I hope to, not only educate others about my condition but inspire those who are battling health situations – or life’s obstacles in general – to power through them and make something amazing out of their lives.