Lola was born with Ebstein’s Anomaly. Ebstein’s anomaly is a rare heart defect that’s present at birth (congenital).
In Ebstein’s anomaly, your tricuspid valve — the valve between the chambers on the right side of your heart — doesn’t work properly. Blood leaks back through the valve, making your heart work less efficiently. Ebstein’s anomaly may also lead to enlargement of the heart or heart failure. Ebstein anomaly accounts for less than 1% of congenital heart diseases and occurs in 1 in 210,000 live births. The condition occurs with equal frequency in males and females; severely affected neonates can present on their day of birth.
Even before her surgery, Lola was an advocate for congenital heart defect awareness. After her surgery she became a strong voice in the CHD community lobbying for mandatory Pulse Ox screening for newborns and that CPR training becomes available for high school students, and eventually become a graduating requirement in schools islandwide. This video documentary is Lola’s story, as documented by Mayo Clinic.