Lola,17. CHD warrior, open heart surgery survivor.
In 2013, I was told that my congenital heart defect (Ebstein Anomaly) had taken a toll on my heart and that surgery was not only recommended but urgent and required. My parents, granting my wish, supported me in my decision not to keep her anomaly a secret. They let me tell my story as best I knew how in order to educate others while rallying support for my journey. This page became the meeting place for me and my crew, my team, the thousands that offered prayers, good vibes, and gave me the motivation to keep going. Thank you for being here. Today, 4 years after my surgery, I share more than just my heart condition, because I AM more than just my heart condition, as are many others who are born with congenital heart defects such as mine. Hope you stick around because I sure have plans to be around for a long, long time.
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